Understanding Freezing of Gait

A short survey from the Project90 student team, in partnership with the Parkinson Association of Alberta

Hello! We’re a group of students working in partnership with the Parkinson Association of Alberta. We’re trying to design something that could help people with Parkinson’s who experience “freezing of gait.” Moments where your feet feel stuck to the floor, even though the rest of you wants to keep moving.

Before we build anything, we want to understand what freezing actually feels like for you: when it happens, what helps you get moving again, and what would genuinely make a difference in your day-to-day life.

Your answers will be combined with everyone else’s and looked at as a group; nobody will see your individual responses attached to your name. It should take about 5–10 minutes to fill out. Thank you for helping us learn from your experience.

Please note that refreshing this page will delete form progress. We recommend writing your answers in a separate document first!

Age:

Shoe Size:0 / 250

Do you have Parkinson's disease, or an atypical parkinsonism?Atypical Parkinsonism, sometimes called Parkinson’s Plus, are a group of disorders that have similar symptoms to Parkinson’s – tremor, slowness and stiffness. Parkinson’s Plus syndromes tend to advance faster and resist standard treatments.Parkinson’s diseaseAtypical parkinsonismNot sureOther:

How long ago were you diagnosed?Less than 3 years ago3-5 years ago5-10 years agoMore than 10 years ago

Do you have neuropathy (reduced feeling in your feet, legs, or hands)?YesNoNot sureOther

In a typical week, about how many times do you experience freezing of gait?01234567+Other

Have you noticed anything that tends to bring on a freeze? For example, feeling stressed, tired, rushed, or something else?

When you freeze, what do you usually do to get moving again?

Do you usually experience freezing on your own, or is someone typically nearby to help?

Is there any other technology, tool, or device you feel would help you for freezing of gait, or for anything else related to living with Parkinson's?

Is there anything else you'd like us to know about your experience with freezing of gait?

Submit

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